Ailesel akdeniz ateşi hastalarında uykusuzluk şiddetinin yaşam kalitesine etkisi
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2021
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Bu çalışma, Ailesel Akdeniz Ateşi hastalarında uykusuzluk şiddetinin yaşam kalitesine olan etkilerini belirlemek amacıyla tanımlayıcı olarak yapılmıştır. Araştırma, Nisan- Haziran 2021 tarih aralığında Behçet ve Ailevi Akdeniz Ateşi Hastaları Derneğine üye olan ve araştırmaya dâhil edilme kriterlerine uyan 516 Ailevi Akdeniz Ateşi hastası ile tamamlanmıştır. Verilerinin elde edilmesinde, Hasta Tanıtım Formu, Uykusuzluk Şiddeti İndeksi ve Ailesel Akdeniz Ateşi Yaşam Kalitesi Ölçeği kullanılmıştır. Verilerin değerlendirilmesinde, bağımsız gruplarda t testi, tek yönlü varyans analizi, Pearson korelasyon ve doğrusal regresyon analizi kullanılmıştır. Çalışmaya katılan Ailesel Akdeniz Ateşi hastalarının, Uykusuzluk Şiddeti İndeksi puan ortalaması 11,8±6,2 ve Ailesel Akdeniz Ateşi Yaşam Kalitesi Ölçeği puan ortalaması 38,5±13,6 olarak bulunmuştur. Uykusuzluk Şiddeti İndeksi ile Ailesel Akdeniz Ateşi Yaşam Kalitesi Ölçeği ve alt boyutlarının puan ortalaması arasında pozitif yönde bir ilişki saptanmıştır (p<0,001). Sonuç olarak, çalışmamızda hastaların uykusuzluk şiddeti arttığında yaşam kalitesinin düştüğü görülmüştür. Ailesel Akdeniz Ateşi hastalarının uykusuzluk şiddetlerinin belirlenerek uyku hijyeninin ve yaşam kalitelerinin arttırılmasına yönelik uygun girişimlerin planlanması, eğitim ve danışmanlık hizmeti verilmesi önerilmektedir.
This study was carried out as a descriptive study to determine the effects of insomnia severity on quality of life in patients with Familial Mediterranean Fever. The research was completed with 516 members with Familial Mediterranean Fever who were members of the Behcet and Familial Mediterranean Fever Patients Association and met the inclusion criteria between April - June 2021. Patient Description Form, Insomnia Severity Index, and Familial Mediterranean Fever Quality of Life Scale were used to obtain the data. In the evaluation of the data, independent groups t test, one-way analysis of variance, Pearson correlation and linear regression analysis were used. The Familial Mediterranean Fever patients who participated in the study had the Insomnia Severity Index score average was 11.8±6.2 and Familial Mediterranean Fever Quality of Life Scale mean score was 38.5±13.6. A positive correlation was found between the Insomnia Severity Index and the mean score of the Familial Mediterranean Fever Quality of Life Scale and its sub-dimensions (p<0.001). As a result, in our study, it was observed that the quality of life of the patients decreased when the severity of insomnia increased. It is recommended to determine the severity of insomnia in patients with Familial Mediterranean Fever and to plan appropriate interventions to increase sleep hygiene and quality of life, and to provide training and consultancy services.
This study was carried out as a descriptive study to determine the effects of insomnia severity on quality of life in patients with Familial Mediterranean Fever. The research was completed with 516 members with Familial Mediterranean Fever who were members of the Behcet and Familial Mediterranean Fever Patients Association and met the inclusion criteria between April - June 2021. Patient Description Form, Insomnia Severity Index, and Familial Mediterranean Fever Quality of Life Scale were used to obtain the data. In the evaluation of the data, independent groups t test, one-way analysis of variance, Pearson correlation and linear regression analysis were used. The Familial Mediterranean Fever patients who participated in the study had the Insomnia Severity Index score average was 11.8±6.2 and Familial Mediterranean Fever Quality of Life Scale mean score was 38.5±13.6. A positive correlation was found between the Insomnia Severity Index and the mean score of the Familial Mediterranean Fever Quality of Life Scale and its sub-dimensions (p<0.001). As a result, in our study, it was observed that the quality of life of the patients decreased when the severity of insomnia increased. It is recommended to determine the severity of insomnia in patients with Familial Mediterranean Fever and to plan appropriate interventions to increase sleep hygiene and quality of life, and to provide training and consultancy services.
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Hemşirelik, Romatoloji, Ailesel akdeniz ateşi, Nursing, Uyku, Rheumatology, Familial mediterranean fever, Uyku bozuklukları, Sleep, Uyku kalitesi, Sleep disorders, Quality of sleep, Yaşam kalitesi, Quality of life
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77